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Appendix

Resource Organizations

Note: Contact information is current at the time of publication but will likely change. Visit the companion Web site for this book at www.sas.com/companionsites for any updates.

Agency for Healthcare Research and Quality (AHRQ)

http://www.ahrq.gov/data

formerly known as the Agency for Healthcare Policy and Research (AHCPR), provides links to many sites including the HCUP (Healthcare Cost and Utilization Project).

Alpha Center

List of abbreviations
http://www.academyhealth.org/publications/glossary.htm

American Health Quality Association (AHQA)

http://www.ahqa.org/

comprised of Quality Improvement Organizations (QIO) and Peer Review Organizations (PRO) in each of the 50 states, the District of Columbia, and the U.S. territories.

AHA Resource Center
http://www.aha.org/aha/resource_center/

list of selected resource links to information on health administration and related topics.

National Uniform Billing Committee
http://www.nubc.org/

developer of the UB-82 and UB-92.

American Medical Association (AMA)

http://www.ama-assn.org/ (800) 621-8335

publisher of the CPT-4 (Current Procedural Terminology) for professional billing. Their on-line catalog also lists the St. Anthony ICD-9-CM coding books and the AMA HCPCS coding books.

American Medical Informatics Association (AMIA)

http://www.amia.org/

American National Standards Institute (ANSI)

http://www.ansi.org

Accredited Standards Committee (ASC)
http://www.x12.org/

X12 Administrative data standard.

Health Level 7 - data standard
http://www.hl7.org

American Society of Health-System Pharmacists (ASHP)

http://www.ashp.org/

publisher of the Therapeutic Drug Classification, the continually revised Hospital Formulary of the American Hospital Formulary Service (AHFS). Provides links to many other pharmacy-based sites.

American Society for Testing and Materials (ASTM)

http://www.astm.org

composed of more than 132 technical standards writing committees.

Centers for Disease Control and Prevention (CDC)

http://www.cdc.gov (404) 332-4569

CDC WONDER (Wide Ranging Online Data for Epidemiology Research)
http://wonder.cdc.gov/

computer link to a wealth of epidemiological and public health data.

Data Interchange Standards Association (DISA)

http://www.disa.org/

Delaware Health Association

http://www.deha.org

well-designed and informative site with many useful links.

Duke University Medical Center Information Center Home Page

www.dhts.duke.edu/

The new Duke Health Technology solutions website is a good source of information and links about health care informatics.

Health Care Financing Administration (HCFA)

http://www.cms.hhs.gov/

ICD-9-CM
official version on CD-ROM containing the ICD-9-CM classification and coding guidelines, available from the Government Printing Office (GPO) at (202) 512-1800 or FAX: (202) 512-2250.

HCPCS
http://www.cms.hhs.gov/medicare/hcpcs/

Medicare and Medicaid Program Memos
http://www.cms.hhs.gov/manuals/pm_trans/2000/memos/default.asp

Medicare and Medicaid Program Manuals
www.cms.hhs.gov/manuals/transmittals/

Electronic (EDI) forms for HCFA-1500 and HCFA-1450 (UB-92)
www.cms.hhs.gov/providers/edi/

HEDIS R Data Release
http://www.cms.hhs.gov/healthplans/hedis/

HIPAA Links to Other Web Sites
http://www.cms.hhs.gov/providers/enrollment/links.asp

HIPAA administrative simplification
www.cms.hhs.gov/medicaid/hipaa/adminsim/

Washington Publishing Company
http://www.wpc-edi.com

standards for Provider Identifier and other information about HIPAA and EDI.

Medicare Provider Analysis and Review (MEDPAR)
http://www.cms.hhs.gov/statistics/medpar/default.asp

data provided by state and then by DRG for all short stay and inpatient hospitals for fiscal years 1990-1995.

International Organization for Standardization (ISO)

http://www.iso.org/

Johns Hopkins University

http://www.acg.jhsph.edu/

provider of Adjusted Clinical Groups (formerly "Ambulatory Care Groups") Case-Mix System.

Medical Records Institute (MRI)

http://www.medrecinst.com/

private enterprise for electronic health record management with statistics and surveys.

National Association of Health Data Organizations (NAHDO)

http://www.nahdo.org

National Association of Public Hospitals and Health Systems (NAPH)

http://www.naph.org/

National Association for Public Health Statistics and Information Systems (NAPHSIS)

http://www.naphsis.org/

information on the EDRS project and links to many other useful sites.

National Center for Health Statistics (NCHS)

http://www.cdc.gov/nchs
(301) 436-7035

part of the Centers for Disease Control (CDC), within the U.S. Department of Health and Human Services (HHS).

National Death Index (NDI)
http://www.cdc.gov/nchs/
(301) 436-8951

Public Health Data Standards Consortium
http://www.cdc.gov/nchs/otheract/phdsc/phdsc.htm

The HHS Data Council
http://aspe.os.dhhs.gov/datacncl/index.shtml

coordinator of all health and non-health data collection and analysis activities of the U.S. Department of Health and Human Services.

National Committee for Quality Assurance

http://www.ncqa.org/

responsible for the activities of:

HCPAC, Health Care Practitioners Advisory Committee for health professionals who are not MD/DO
PPAC, Practicing Physicians Advisory Committee
HEDIS, the report card for HMOs (see the glossary)

National Committee on Vital and Health Statistics (NCVHS)

http://www.ncvhs.hhs.gov/

National Council for Prescription Drug Programs (NCPDP)

http://www.ncpdp.org

National Health Information Resource Center (NHIRC)

http://www2.ari.net/chrc/oldchrc/nhirc/home_newlogsky.html

clearinghouse and communications hub for health information systems and data.

National Standards Systems Network (NSSN)

http://www.nssn.org/

National Technical Information Service - Federal Computer Products Center (NTIS - FCPC)

http://www.ntis.gov/
(703) 487-6430

NDC Codes
http://www.fda.gov/cder/ndc/index.htm

official versions of the files

SCAH-2 Severity Classification for AIDS Hospitalization
SAS macro software package written to classify AIDS patients into 3 stages and 21 sub-stages corresponding to increasing levels of illness severity.

National Uniform Billing Committee

see American Hospitals Association.

Substance Abuse and Mental Health Services Administration (SAMHS)

http://www.samhsa.gov

SAS macros for probabilistic linking and an overview of the routines used in the prototype SAMHSA integrated database. The programs available here may be useful to agencies that are developing their own linking systems.

Texas Health and Human Services Commission

http://www.hhsc.texas.gov/medicaid/

glossary of Medicaid reform terminology.

http://www.hhsc.state.tx.us/medicaid/mmc_pdf/Acronyms.pdf

Medicaid acronyms

http://www.hhsc.state.tx.us/ndis/resources.htm

Links to HIPPA Web Resources

U.S. Census Bureau

http://www.census.gov

State population estimates
http://www.census.gov/population/estimates/state/

Record Linkage Techniques 1997, Proceedings
http://www.census.gov/srd/www/reclink/reclink.html

PDF files of Record Linkage Techniques, Proceedings from 1985 and 1997 at the Federal Committee on Statistical Methodology site
http://www.fcsm.gov/reports/

Other record linkage papers in the Statistical Research Division report series
http://www.census.gov/srd/www/byyear.html

Washington University Health Science Information Center

http://depts.washington.edu/hsic/

good source of links and information about health services and public health.

World Health Organization (WHO)

http://www.who.int

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